Genetic Alliance UK/ Inherited Cardiac Conditions

Why not check out the links on this article……. very interesting.

A very informative site.

http://www.geneticalliance.org.uk

Part of this web site has a section entitled “Telling stories” and I have copied the following info from the website.

“TELLING STORIES” is a freely available website and is a collection of stories from individuals, families and health professionals from around the UK.

The project is led by University of Glamorgan in conjunction with the University of Plymouth, The Wales Gene Park and hosted by the National Genetics Education Development Centre. It was launched in 2007  and at present there are over 100 stories available. Some of the stories involve patients who have inherited cardiac conditions ie/ Long QT Syndrome or Brugada Syndrome and have gone onto have I.C.D devices fitted.

Their aim is to continue to add stories and information to the website and this can be accessed by all interested individuals including health professionals.

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