As a group we’ve found that it helps to share our trials and tribulations.
The professionals try their best to help support us, but it is group members who can really know how you actually feel.
*Nervousness about tests and how the results affect you and your family.
*Wondering how the diagnosis affect everyday living and work experiences.
*Feeling anxious in the middle of the night and finding strength to cope without unduly upsetting your loved ones.
*Feeling that the hospital staff don’t understand enough about ICD / cardiac arrhythmia.
The list of issues is endless but all members of the group have ‘been there’.
We would love to share some stories especially with newcomers to the group. The information would be invaluable. The story could be related from a patient point of view or from the perspective of a loved one.
If you feel you would like to do this then email me at gwentdefibbers AT hotmail DOT co DOT uk
We won’t divulge names and it wouldn’t have to take up reams…… just a few words could hopefully make a big difference.
Remember, you do not have to be a member of this support group to leave a comment or contact us.
ALL blog visitors are more than welcome to leave a comment or contact us…