From: malinda morgan [mailto:firstname.lastname@example.org]
Sent: 20 June 2017 09:41
To: Davies, Alun (Aelod Cynulliad | Assembly Member) <Alun.Davies@assembly.wales>
Good morning Alun
We spoke in Tredegar Park the other Sunday about defibs
I now have some figures for you supplied by N.H.S. Direct.
There are some 40+ defibs throughout Blaenau Gwent and I have a breakdown of these:-
Dental practices 6
Health Centres 10
Schools 8 (6 being in Tredegar)
Sports Centres 4
Sports clubs 5
Care Homes 2
Manufacturing Firms 1
Retail Stores 3
Public Access 3 ( 2 being inTredegar)
I have tried to contact Blaenau Gwent councillors to discuss the lack of defibs in schools and other public places but have had no reply. If you could help in any way I would be very grateful
Chairman Gwent Defibbers
Alun has suggested meeting up to discuss how best we can take this forward. If this is acceptable I can provide some potential dates and times?
Office Co-Ordinator and Senior Caseworker for Alun Davies AM
Address/Cyfeiriad 23 Beaufort Street, Brynmawr, Blaenau Gwent, NP23 4AQ
Tel/Ffôn 01495 311160
Feedback to follow…
Gwent Defibbers support group was nominated for a volunteer award and I am very pleased to announce that we have come runner up in the ‘Volunteer of the Year Awards 2017’ thanks to Wales Council for Voluntary Action.
Gwent Defibbers (Tredegar)
A support group for cardiac arrest survivors and their families has been ‘monumental’ in helping its 90-plus members come to terms with living with the condition.
The ‘Gwent Defibbers’ group was set up in 2009 by Mike Morgan – who suffered a cardiac arrest many years ago – and Sandra Davies, whose husband is also a survivor. Also involved in the group are Mike’s wife Lynne, Sandra’s husband Jeff, and Liz, who looks after the website.
‘People who have Cardiac Arrest (CA) have a high risk of experiencing another and are offered an Implantable Cardioverter Defibrillator (ICD) – a matchbox-sized device implanted into the chest with lead(s) implanted into the heart,’ said Mandie Welch of Cardiff and Vale University Health Board.
‘This device can save your life by delivering an electric shock directly to the heart, these shocks can be very painful, and living with this device is known to cause anxiety and depression. Gwent Defibbers has been monumental in helping others come to terms with living with their ICD.’
The group runs a buddy system, where patients have the opportunity to discuss their ICD implant with others who have a device, it has raised funds for defibrillators in public places and has a website offering up to date information for all aspects of living with an ICD.
‘All of this is done on a voluntary basis – the arranging of meetings, venues and speakers is a huge task to take on, but they both do it regardless.’ Mandie Welch added. ‘Mike has recently been diagnosed with severe heart failure, as has Sandra’s husband Jeff, yet they continue to provide their ongoing support to others who need it. They are both inspirational and deserve to be recognised for their ongoing support and hard work.’
Excellent news. Our support group is affiliated to the BHF for another year.
|Dear Mr Morgan,
Thank you for completing this year’s re-affiliation form. I am pleased to inform you that your group is now affiliated to the British Heart Foundation (BHF) for another year. Your Certificate of Affiliation will be in the post to you shortly.
Don’t forget, if your group’s details change just let us know and we’ll update our systems. This way you’ll make sure your group doesn’t miss out on any of the exciting opportunities available to Heart Support Groups.
Your group’s public liability insurance will also be valid for another year. You can find out more about your insurance cover in the Safety First booklet. If you don’t already have one, we recommend you order your free copy using the resource code HSGF, from our website at bhf.org.uk/publications or call 0870 600 6566.
The team would also like to take this opportunity to thank you and everyone involved with your group for all of your hard work over the last 12 months. We know the support you provide to heart patients and their families and friends in your local community makes a real difference.
If you’d like to get in touch with the team you can reach us on 0207 554 0091 or you can email email@example.com.
Patient Support and Engagement team administrator
Huge congratulations to Mike for getting an invite to the Queen’s Garden Party.
From the Royal Family website… https://www.royal.uk/garden-parties
Over the course of each year, The Queen welcomes over 30,000 guests to spend a relaxed summer afternoon in the beautiful gardens of Buckingham Palace …..
At each Garden Party, around 27,000 cups of tea, 20,000 sandwiches and 20,000 slices of cake are consumed!
Garden Parties are an important way for The Queen to speak to a broad range of people from all walks of life, all of whom have made a positive impact in their community.
We wish Mike and Lynne best wishes and hope they enjoy the event and will update blog with photo’s once available.
I’ve posted 2 photos from the Garden Party which was attended by Mike and Lynne.
They tell me the day was fantastic and a great experience.
Mike & Lynne on the red carpet!
Her Majesty The Queen
The Queen looks so tiny.
Congratulations both and very glad the day went well.
Many thanks to the people associated with the Loyal Order of Moose, Tredegar for their Grant donated to GwentDefibbers Support Group.
Mike was invited to give a talk about the support group and to raise awareness of ICD’s.
Picured here – Jean Gardner & Mike
The Grant will be used to purchase a projector for the support group. At present a projector has to be borrowed for each meeting in order for the speakers to convey their messages easier.
Many thanks to Jean Gardner, Ladies section of The Loyal Order of The Moose, Tredegar for inviting Mike and for the Grant.
We said au revoir to ICD Nurse Specialist Mandie Welch at the last support group meeting.
Most of us who have attended the Cardiff Cardiology Dept.at University Hospital of Wales will have met Mandie at one time or another.
She has offered us support to come to terms with living with our ICD’s by giving us the information we’ve needed and reassurances to ourselves and families by the bucketful.
Pictured from L-R Sandra, Mandie Welch, Mike and Lynne
Mandie now works in the Cardiology Department at Cwm Taf University Health Board.
We wish her all the very best in her new job & would like to say lots of thanks from all of us at GwentDefibbers Support Group.
I enclose a photo taken in Tredegar Town Council Chambers.
Mike was kindly presented with a cheque for £200 for GwentDefibbers to help promote awareness of arrhythmias, sudden death and CPR / AED’s
Many thanks to Mayoress Jacqueline Thomas and Tommy Smith, Leader of Tredegar Town Council for considering our support group when allocating grants.
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Here are the guidelines for medical professionals entitled ” Assessing fitness to drive. A guide for Medical Professionals”.
We are very pleased to announce that Sasha Hooper has raised the grand total of £810 by running the Cardiff half marathon for our group .
On behalf of GwentDefibbers we would like to say a BIG thank you