Well done to Sandra, Mike & Lynne for helping to raise awareness of GwentDefibbers Support Group (Photos to follow).
They were invited to a celebration of Gwent Voluntary Associations (GAVO) at Botany Bay, Tintern. His Royal Highness Prince Charles and Her Royal Highness the Duchess of Cornwall were in attendance.
The BBC wrote https://www.bbc.com/news/uk-wales-44679357
We’re VERY proud of them all and as soon as photos are available I’ll update the site
What if my ICD gives me a shock?
Cardiff & Vale University Board Patients –
First ever shock – contact electrocardiogram (ECG) department on 02920 743325 between 9am – 5pm Monday to Friday.
One or two shocks – inform ECG Department, but a visit to them may not be necessary.
Cwm Taf University Health Board Patients –
All patients who have their cardiac device care at Royal Glamorgan Hospital should inform their Arrhythmia Nurse or Cardiac Device Clinic after experiencing any shock therapy.
Arrythmia Nurse – Dawn Watkins – 01443 443443 ext 6486 or Cardiac Device Clinic – 01443 443226
Multiple shocks or more than two shocks in quick succession – you will need to be admitted to hospital to check your heart rhythm and your ICD. You will need to call 999.
If the ambulance crew record an ECG make sure someone asks for a copy of the ECG reading.
Remember – after a shock, find a place to sit or lie down and try to keep calm. If possible, have someone stay with you throughout the event. These are guidelines only. If you feel unwell after a shock then you must seek medical advice. If at any time you need someone to talk to, then please contact one of our committee members who are more than happy to talk to you about life with an ICD.
GwentDefibbers would like to thank Professor Chris George for attending our support group meeting.
Professor George specialises in genetic research and looking at how our genes affect cardiac arrhythmias. His talk was very informative and interesting and offered the group a marvellous insight into the cardiac research that is taking place ‘behind the scenes’.
Pictured here from L – R Sandra, Chris George, and Mike
More information regarding the research that is undertaken by Chris George and his team can be found here http://www.swansea.ac.uk/press-office/latest-news/ground-breakingbhfcymruresearchatmedicalschoolimpressescabinetsecretaryforhealth.php
and here http://www.swansea.ac.uk/staff/medicine/research/georgechristopher/
From: Cardiomyopathy UK <firstname.lastname@example.org>
Date: Wednesday, 16 May 2018
Subject: May 2018 Services Update
To: Michael <email@example.com>
All about devices – ICD
Hot off the presses, we have just published a new book about implantable defibrillator devices
Our new booklet on ICDs is now available to download or order. The booklet includes detailed information to help you learn more about implantable devices, including;
- different types of devices
- how they are implanted
- the emotional impact
- deciding whether to have an ICD or not
- personal stories from people living with an ICD
To find more details about the conference please visit here https://www.cardiomyopathy.org/national-conference-2018/national-conference-2018
Members of GwentDefibbers recently attended a one day conference in Cardiff which was run by the British Heart Foundation (BHF).
An informative, enjoyable day was had by all.
Pictured here from L – R – Sylvia Jones (Chairwoman BHF Gwent branch), Simon Gillespie (Chief Executive BHF), Mike Morgan (Chairman GwentDefibbers) and Paul Jones (Gwent branch BHF)
Great to see Simon wearing the GwentDefibbers lapel badge
I heard recently of a local Crime Prevention Panel initiative called the Home Safe Hospital Scheme and I’d urge people to take advantage of this excellent idea.
It is intended for those who are in and out of hospital and worry about their homes being left unattended.
I made inquiries and was visited by two members of the panel, pictured here from left to right, Keith Davies, and Alan Williams.
They assessed the property and assured me that they could offer assistance by way of a CCTV camera and also if required, a phone link which was PIR activated and would alert family and friends if there was any activity during the time your home was empty.
I opted for CCTV and this was fixed up for me today.
As you can imagine this will offer a lot of reassurances.
A BIG thank you to Keith, Alan, and Martin for fixing this camera today and for the professional manner in which they carried out the work.
You can contact the panel via email at alanwilliams1940 at gmail dot com or georginah555 at gmail dot com
You can also follow them on Twitter @EVTredCPP and they also have a Facebook page entitled Ebbw Vale & Tredegar Crime Prevention Panel.
*Panel members will always phone first to make an appointment with you
* will carry photo ID
This is a local initiative and for those outside this area it might be well worth contacting your local Crime Prevention Panel to see what they can offer you
Thank you to Tredegar Town Council for the 2017/2018 Grant given to the GwentDefibbers Support Group.
The grant is very much appreciated and will be used to continue to promote health and well being and living with ICD’s.
Thank you to the Rotary Club of Cardiff – City of Llandaf for inviting Mike (GwentDefibbers Chairman) to a recent meeting.
The meeting allowed Mike to raise the profile of our support group. It also gave Rotary Club members an opportunity to participate in a Q & A session regarding ICD devices.
Mike thoroughly enjoyed the time that he spent with you all.
We would also like to thank the Club for the donation that they gave to our group.
To find out more about the Rotary club please visit their website at http://www.rotary-ribi.org/clubs/homepage.php?ClubID=933#clubInfo
Mike had a fantastic welcome from the Tredegar branch of the Women’s Institute.
He arranged a visit with these ladies so that everyone could update their basic life-saving skills and awareness of AED’s (external Defibrillators).
We would like to thank the W.I. for collecting £55 towards the GwentDefibbers support group. It is very much appreciated.
Pictured here – Fay & Mike
For more information about the W.I. please visit here….
Mike was recently invited to open a new British Heart Foundation shop in Cwmbran, Gwent.
It is situated in Cwmbran Shopping Centre and money raised from purchases will go towards research which is supported by the British Heart Foundation.