Heart Failure Project

Please find enclosed an invite from Jackie Miles and Dr Ross regarding an upcoming research project. Further information can be obtained here…
Lead Nurse for Heart Failure & Cardiac Rehabiliation Research
R&D Dept
St Woolos Hospital
tel: Helene Lavender  01633 238140 x 48140
Subject: Heart Failure Project – invite

Hi Mike and Sandra
I hope all is well as I have a favour to ask of you!
Myself and a colleague Dr Linda Ross are in the process of designing a research project in partnership with the South Wales Clinical Trials Unit based at UHW.
The project will test a new intervention led by a Heart Failure nurse with additional training in Spiritual Support (a Facilitator). Spiritual Support is an element of care that, because of its sensitive nature, tends to be forgotten.
‘Spiritual care is about helping and supporting people whose sense of meaning, purpose and worth is challenged by illness. It is not necessarily about religion. In the UK such care is not routinely offered, but research into spiritual care of people suffering from heart failure is being called for with a view to improving their overall care’.
We would like to invite people with heart failure and their husband/wife/partner/carer to join us and give us their views on the design of the project and the materials we plan to use e.g patient care plan, questionnaires and information leaflets.
We think there will be around 3-4 meetings lasting up to 2hrs over the next few weeks – we have yet to decide on the venue as this will depend on where the majority of people live.  
Mike/Sue please could you put this invitation out to your group. We are hoping for at least 10 people and if you know of anyone directly – please feel free to put them in touch with me.
All expenses, will of course, be covered.
If you have any queries or questions please don’t hesitate to get back to me
 All the very best
 Jackie Miles MBE PhD



Cardiac Surgery Research: Help required.

Please find enclosed a copy of a letter from the British Heart Foundation

If ANYONE interested then please use contact details in the letter. 

Please note that they need a response by the 19th June 2017


From: Sinduja Manohar
Sent: Monday, June 12, 2017 5:39 PM
To: mike.morgan0@gmail.com; ‘davies.j20@sky.com’
Subject: Can your group help set priorities for cardiac surgery research?

Dear Mike, Jeff and Sandra,

We’ve been approached by an organisation who are looking to set up a Priority Setting Partnership which is a way to bring patients, carers and clinicians together to identify and prioritise the unanswered questions about treatments that they agree are the most important – this is where they need your help.

In particular they are hoping to set up the Partnership to focus on Cardiac Surgery Research. In order to get funding to achieve this they need to put forward their plans of who will sit on the steering / working group to the funding committee. They see the importance of having patients be part of the steering / working group to ensure patient needs are at the heart of what they do and are hopeful that you will want to get involved.

I am emailing to ask if this is something one of you or someone in your group would be interested in getting involved in. Given your wider patient links with the Heart Support Group we believe that you’d be able to talk to a range of patients who have had cardiac surgery to find out their viewpoints. If you do get involved and funding is provided, it is anticipated there will be three face to face meetings and six teleconferences over 2 years.

Please note that at the moment this is only putting forward your expression of interest in getting involved with this partnership as funding has not yet been secured and this is not a BHF opportunity – we are promoting it on behalf of another organisation.

I hope this is something you are able to get involved in. I do realise this is all a bit vague so if you do have any questions or would like to discuss anything further please do not hesitate to get in touch.

Best wishes,

Sinduja Manohar
Patient Engagement Officer
British Heart Foundation
Greater London House | 180 Hampstead Road
London | NW1 7AW
DD: +442075540426