Category Archives: Story sharing

Nick’s Story: Ideopathic Dilated Cardiomyopathy

Many thanks Nick for sharing your story. Hello my name’s Nick and I’m 52 years young. In 2006 I came back from holiday unable to stop sweating and feeling like I’d pulled a muscle in my chest. I went to the doctor and was rather surprised to find my resting heart rate was 165 bpm and …

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From ICD to CRT-d

Thanks to Mike for sharing his story. I had been feeling unwell and generally very tired for the past couple of months and decided to have a chat with the Heart Failure Nurse Specialist in Neville Hall. My medications were reviewed but the new tablets contributed to a horrible dry cough. I was unable to …

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Airport Security

Many thanks to Sarah for sharing her recent experiences… just returned from hol flying out from Cardiff Airport. They have a new security scanner which is deemed safe for medical implants. I hadn’t heard about this before flying and was quite dubious about standing in it. Was given this leaflet: http://www.cardiff-airport.com/uploads/security/Security%20scanner%20information.pdf and http://www.cardiff-airport.com/airport-security/ When you get to …

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Sleep apnoea

Many thanks to Mike for sharing his story… I attended a check up session with the Heart Failure nurse when she asked me if I would complete a questionnaire about my sleeping pattern. She explained that a study was being carried out on people with heart failure to determine how their sleep patterns may be affected by this illness. …

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Sarah’s Story

Please find the following story sent to me by Sarah….. I had a cardiac arrest on 10th February and was successfully resuscitated by my husband (my hero). I had an echocardiogram and was told that the pumping action of my heart was severely impaired. I was totally shocked. I was admitted to Llandough Hospital and …

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Sharing your story

As a group we’ve found that it helps to share our trials and tribulations. The professionals try their best to help support us, but it is group members who can really know how you actually feel. *Nervousness about tests and how the results affect you and your family. *Wondering how  the diagnosis affect  everyday living …

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Rachel’s story

With thanks to Sandra for passing this link on to us. The link comes to us via the Arrhythmia Alliance website –  a site well worth investigating Rachel – sudden cardiac arrest …  http://heartrhythmcharity.org.uk/www/771/0/rachel-suddencardiacarrest-aed/

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My story…..

My story – Mr Mike Morgan. Mike worked for a company doing research of Literacy in Wales. In August 2004 he was working in Caernarfon, North Wales when he began to feel unwell. Mike takes up the story I had finished work for the day and was preparing for the long drive back to Tredegar. It was …

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My Thyroid Scan.

Experience shared by a group member….. I have been taking the anti-arrhythmic drug Amiodarone for about 2 years. There are a number of side effects associated with this medicine so in order for medical staff to monitor the effects of the drug I attend the GP surgery for 6 monthly blood tests. These tests can indicate if thyroid, liver and …

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My ICD battery / box change…

Written by a support group member A little while back I had to have my ICD battery / box changed and so I thought I might share my experiences….. I was very anxious! I never used to be like this, in real life I’m bright and breezy but since my heart rhythm problem manifested itself I’ve …

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