The BHF (British Heart Foundation) are hoping that this area will soon have a BHF owned shop.
The monies raised from the goods sold there would go to the British Heart Foundation which is a registered Charity. This idea is excellent and there are several of these shops throughout the UK already.
Pictured here is Simon Gillespie C.E.O of the BHF accompanied by Sylvia and Paul Jones.
Sylvia is the Chairwoman of the Gwent branch of the BHF.
Sylvia and Paul have helped raise several thousand pounds in aid of the BHF
We thank them for all the work they do.
Gwent has recently formed a new Heart Failure Steering Group and it is headed by Dr Jackie Austin.
and Professor Linda Ross.
In order to ensure we receive feedback from across Gwent we are sending out an invitation.
We want to ensure that the needs of all of the community are met and consequently we are particularly interested in individuals from the Black and Asian minority ethnic communities (BAME) in Gwent.
Interested individuals can contact Chairman Mike Morgan and he will be able to pass your details on to Jackie.
Mike’s details can be found on the Contact Page of this blog.
The Heart Failure Steering Group looks forward to making your acquaintance.
From the BBC News Website
I’m sure most of us would agree that this can only be a good thing
Well done to Sandra, Mike & Lynne for helping to raise awareness of GwentDefibbers Support Group
They were invited to a celebration of Gwent Voluntary Associations (GAVO) at Botany Bay, Tintern. His Royal Highness Prince Charles and Her Royal Highness the Duchess of Cornwall were in attendance.
The BBC wrote https://www.bbc.com/news/uk-wales-44679357
We’re VERY proud of them all and as soon as photos are available I’ll update the site
Hope you’re well.
BHF is looking to do some work around better understanding the views and needs of people affected by heart and circulatory conditions, such as yourself, and we would really appreciate your help.
As well as doing our own consultations with patients and carers later in the year, we’ve asked Picker (a leading organisation in patient centred care) to do some research from an outside perspective.
As part of this they are looking to do phone interviews with patients and carers who have Heart Failure to share their views on the services provided by the NHS and the British Heart Foundation.
Am I right in thinking you have Heart Failure? If so, would you be interested in taking part?
It will be a chance for you to discuss the challenges you and others with the condition face, what you would most want to change about your healthcare, what support you would want from BHF and much more.
You can find out more information on their website (http://ow.ly/oCOf30kxNOr) and Picker will provide you with £30 shopping vouchers as a thank you for your time.
If you’re interested in taking part, or have any questions at all, please get in touch directly with Susanne Käsbauer or Alan Poots at Picker on 01865 208100 or email firstname.lastname@example.org
I do apologise for the very short notice but do hope you will be able to take part. If you do get involved, do let me know how you found the session.
What if my ICD gives me a shock?
Cardiff & Vale University Board Patients –
First ever shock – contact electrocardiogram (ECG) department on 02920 743325 between 9am – 5pm Monday to Friday.
One or two shocks – inform ECG Department, but a visit to them may not be necessary.
Cwm Taf University Health Board Patients –
All patients who have their cardiac device care at Royal Glamorgan Hospital should inform their Arrhythmia Nurse or Cardiac Device Clinic after experiencing any shock therapy.
Arrythmia Nurse – Dawn Watkins – 01443 443443 ext 6486 or Cardiac Device Clinic – 01443 443226
Multiple shocks or more than two shocks in quick succession – you will need to be admitted to hospital to check your heart rhythm and your ICD. You will need to call 999.
If the ambulance crew record an ECG make sure someone asks for a copy of the ECG reading.
Remember – after a shock, find a place to sit or lie down and try to keep calm. If possible, have someone stay with you throughout the event. These are guidelines only. If you feel unwell after a shock then you must seek medical advice. If at any time you need someone to talk to, then please contact one of our committee members who are more than happy to talk to you about life with an ICD.
GwentDefibbers would like to thank Professor Chris George for attending our support group meeting.
Professor George specialises in genetic research and looking at how our genes affect cardiac arrhythmias. His talk was very informative and interesting and offered the group a marvellous insight into the cardiac research that is taking place ‘behind the scenes’.
Pictured here from L – R Sandra, Chris George, and Mike
More information regarding the research that is undertaken by Chris George and his team can be found here http://www.swansea.ac.uk/press-office/latest-news/ground-breakingbhfcymruresearchatmedicalschoolimpressescabinetsecretaryforhealth.php
All about devices – ICD
Hot off the presses, we have just published a new book about implantable defibrillator devices
Our new booklet on ICDs is now available to download or order. The booklet includes detailed information to help you learn more about implantable devices, including;
- different types of devices
- how they are implanted
- the emotional impact
- deciding whether to have an ICD or not
- personal stories from people living with an ICD
To find more details about the conference please visit here https://www.cardiomyopathy.org/national-conference-2018/national-conference-2018
Members of GwentDefibbers recently attended a one day conference in Cardiff which was run by the British Heart Foundation (BHF).
An informative, enjoyable day was had by all.
Pictured here from L – R – Sylvia Jones (Chairwoman BHF Gwent branch), Simon Gillespie (Chief Executive BHF), Mike Morgan (Chairman GwentDefibbers) and Paul Jones (Gwent branch BHF)
Great to see Simon wearing the GwentDefibbers lapel badge
I heard recently of a local Crime Prevention Panel initiative called the Home Safe Hospital Scheme and I’d urge people to take advantage of this excellent idea.
It is intended for those who are in and out of hospital and worry about their homes being left unattended.
I made inquiries and was visited by two members of the panel, pictured here from left to right, Keith Davies, and Alan Williams.
They assessed the property and assured me that they could offer assistance by way of a CCTV camera and also if required, a phone link which was PIR activated and would alert family and friends if there was any activity during the time your home was empty.
I opted for CCTV and this was fixed up for me today.
As you can imagine this will offer a lot of reassurances.
A BIG thank you to Keith, Alan, and Martin for fixing this camera today and for the professional manner in which they carried out the work.
You can contact the panel via email at alanwilliams1940 at gmail dot com or georginah555 at gmail dot com
You can also follow them on Twitter @EVTredCPP and they also have a Facebook page entitled Ebbw Vale & Tredegar Crime Prevention Panel.
*Panel members will always phone first to make an appointment with you
* will carry photo ID
This is a local initiative and for those outside this area it might be well worth contacting your local Crime Prevention Panel to see what they can offer you