Heart Failure Patient? Please help us…

Please find enclosed a copy of a letter sent to Mike via the BHF

If you would like to get involved with this project then please use contact details in letter. …Thank you

Dear Mike.

We have been approached by an external organisation who is looking for patients with heart failure to get involved with their study.

When you signed up to Heart Voices you stated you had heart failure so I am sending this to you in case you are interested in getting involved.

Get involved in the design and development of a mechanical circulatory support (MCS) device for patients with severe heart failure

A research team at Queen Mary University of London are looking for patients and carers who have been affected by heart failure, and may be potential recipients of the device, to get involved with the research team and help them with the development of their device.

Your input will be used to guide part of the design for the device as they move towards animal and human trials.

The project will begin in November 2017 and will last for two years.

By getting involved you’ll be asked to be part of a focus group where you’ll provide feedback including any ethical concerns you may have and the research team will give your regular updates.

If you are not able to travel to London, you can get involved online through Skype or WebEx at a time that is convenient to members of the group.

They will cover all expenses and will offer a small financial incentive for participation.

If you’re interested in getting involved please contact the research team directly – Amin Rezaienia at a.rezaienia@qmul.ac.uk

Best wishes,


Sinduja Manohar

Patient Engagement Officer
British Heart Foundation
Greater London House | 180 Hampstead Road
London | NW1 7AW
DD: +442075540426


Health Talk – Heart Failure

Thank you to yourhealthtalk.org for this link…

HeartTalk researchers travelled around the UK interviewing people living with heart failure to hear about their experiences.

Thank you to Mike for participating in the research… here is the video…



Heart Failure

With many thanks to Cheryl and Sarah, (heart failure nurses), for attending our January 2016 meeting. Much appreciated.

What is heart failure?

Heart failure is a condition in which the heart has lost the ability to pump enough blood to the body’s tissues at the right pressure.

The heart will require assistance to help it do its job properly.

What are the symptoms?
They may include –
*Shortness of breath when active and at rest
*Fatigue and general weakness
*Swelling of legs, ankles and / or feet
*Fast heartbeat
*Irregular heartbeat
How is heart failure diagnosed?
*Doctors will obtain a full medical history
*Bloods will be taken for various tests.
*Chest x rays may be taken.
*Echo cardiogram may be performed
All tests will be discussed with you, your doctor and nurses.
What treatment (s) are available?
Treatment may include
*Advice regarding lifestyle changes
Much more information regarding heart failure can be obtained via NHS Choices http://www.nhs.uk/conditions/heart-failure/Pages/Introduction.aspx
Remember, you can always make arrangements to speak with your doctors, nurses and  / or pharmacist for more information.

Heart Failure symptom sorter

Many thanks to Cheryl Palfrey and colleague Sarah, Heart Failure Nurse Specialists for raising awareness of the symptom sorter chart.

It is issued by the Cardiac Rehabilitation and Heart Failure Services, Aneurin Bevan Trust.

sorter (3)

For those who may be known to the Heart Failure team and you have any concerns regarding symptoms please contact the department in Nevill Hall, Abergavenny.



Are you affected by Heart Failure…….?

I have enclosed a link from Poole Heart Support Group which explains about research which is being undertaken regarding people who suffer with HEART FAILURE.

Mike has been approached and has agreed to participate in this research. The link has lots of information and please find enclosed contact details for anyone else that would be interested in this… http://www.poolehsg.org.uk/are-you-affected-by-heart-failure/

More information regarding the Senior Researcher & team can be found here…. http://www.phc.ox.ac.uk/team/researchers/julie-evans

Thank you for reading.