Defibrillators situated in Blaenau Gwent

From: malinda morgan [mailto:mike.morgan0@gmail.com]
Sent: 20 June 2017 09:41
To: Davies, Alun (Aelod Cynulliad | Assembly Member) <Alun.Davies@assembly.wales>
Subject: Defibrillators

Good morning Alun
We  spoke in Tredegar Park the other Sunday about defibs
I now have some figures for you supplied by N.H.S. Direct.
There are some 40+ defibs throughout Blaenau Gwent and I have a breakdown of these:-

Dental practices 6

Health Centres 10

Schools 8 (6 being in Tredegar)

Sports Centres 4

Sports clubs 5

Care Homes 2

Manufacturing Firms 1

Retail Stores 3

Public Access 3 ( 2 being inTredegar)

I have tried to contact Blaenau Gwent councillors to discuss the lack of defibs in schools and other public places but have had no reply. If you could help in any way I would be very grateful

Mike Morgan
Chairman Gwent Defibbers

—————-

Dear Mike,

Alun has suggested meeting up to discuss how best we can take this forward.  If this is acceptable I can provide some potential dates and times?

Best wishes,

Kelly

Kelly Preston
Office Co-Ordinator and Senior Caseworker for Alun Davies AM
Address/Cyfeiriad            23 Beaufort Street, Brynmawr, Blaenau Gwent, NP23 4AQ
Tel/Ffôn                           01495 311160
E-mail/E-bost                  kelly.preston@assembly.wales


Feedback to follow…

Volunteer Awards

Excellent news.

Gwent Defibbers support group was nominated for a volunteer award and I am very pleased to announce that we have come runner up in the ‘Volunteer of the Year Awards 2017’ thanks to Wales Council for Voluntary Action.

wcva

 

Gwent Defibbers (Tredegar)

A support group for cardiac arrest survivors and their families has been ‘monumental’ in helping its 90-plus members come to terms with living with the condition.

The ‘Gwent Defibbers’ group was set up in 2009 by Mike Morgan – who suffered a cardiac arrest many years ago – and Sandra Davies, whose husband is also a survivor.  Also involved in the group are Mike’s wife Lynne, Sandra’s husband Jeff, and Liz, who looks after the website.

‘People who have Cardiac Arrest (CA) have a high risk of experiencing another and are offered an Implantable Cardioverter Defibrillator (ICD) – a matchbox-sized device implanted into the chest with lead(s) implanted into the heart,’ said Mandie Welch of Cardiff and Vale University Health Board.

‘This device can save your life by delivering an electric shock directly to the heart, these shocks can be very painful, and living with this device is known to cause anxiety and depression. Gwent Defibbers has been monumental in helping others come to terms with living with their ICD.’

The group runs a buddy system, where patients have the opportunity to discuss their ICD implant with others who have a device, it has raised funds for defibrillators in public places and has a website offering up to date information for all aspects of living with an ICD.

‘All of this is done on a voluntary basis – the arranging of meetings, venues and speakers is a huge task to take on, but they both do it regardless.’ Mandie Welch added.  ‘Mike has recently been diagnosed with severe heart failure, as has Sandra’s husband Jeff, yet they continue to provide their ongoing support to others who need it.  They are both inspirational and deserve to be recognised for their ongoing support and hard work.’

Thank you

UPDATE (July 2017)

Hello all

I hope you are well. Congratulations again on your well-deserved achievement in the Wales Volunteer of the Year Awards 2017.

The photos from the event can be viewed here: https://drive.google.com/open?id=0Byn-qQ5OjAnqWVZzLVBUYzJZOFE

I have pleasure in attaching an image that you are welcome to use on your e-mail and other correspondence which highlights your amazing achievement. If you have any questions about its use, please do not hesitate to contact us.

Best wishes and congratulations once again.

Kate

Kate Gobir 
Swyddog Cymorth Digwyddiadau a Phartneriaethau / Events & Partnerships Support Officer
Cyngor Gweithredu Gwirfoddol Cymru / Wales Council for Voluntary Action

WCVA Volunteer of the Year 2017

WCVA Volunteer of the Year 2017

WCVA Volunteer of the Year 2017

GwentDefibbers & BHF

bhf

Excellent news. Our support group is affiliated to the BHF for another year.

 

Dear Mr Morgan,

Thank you for completing this year’s re-affiliation form. I am pleased to inform you that your group is now affiliated to the British Heart Foundation (BHF) for another year. Your Certificate of Affiliation will be in the post to you shortly.

Don’t forget, if your group’s details change just let us know and we’ll update our systems. This way you’ll make sure your group doesn’t miss out on any of the exciting opportunities available to Heart Support Groups.

Your group’s public liability insurance will also be valid for another year. You can find out more about your insurance cover in the Safety First booklet. If you don’t already have one, we recommend you order your free copy using the resource code HSGF, from our website at bhf.org.uk/publications or call 0870 600 6566.

The team would also like to take this opportunity to thank you and everyone involved with your group for all of your hard work over the last 12 months. We know the support you provide to heart patients and their families and friends in your local community makes a real difference.

If you’d like to get in touch with the team you can reach us on 0207 554 0091 or you can email heartsupportgroups@bhf.org.uk.

Best wishes,
Sophie
Patient Support and Engagement team administrator


Fight For Every Heartbeat

Cardiac Surgery Research: Help required.

Please find enclosed a copy of a letter from the British Heart Foundation

If ANYONE interested then please use contact details in the letter. 

Please note that they need a response by the 19th June 2017

 

From: Sinduja Manohar
Sent: Monday, June 12, 2017 5:39 PM
To: mike.morgan0@gmail.com; ‘davies.j20@sky.com’
Subject: Can your group help set priorities for cardiac surgery research?

Dear Mike, Jeff and Sandra,

We’ve been approached by an organisation who are looking to set up a Priority Setting Partnership which is a way to bring patients, carers and clinicians together to identify and prioritise the unanswered questions about treatments that they agree are the most important – this is where they need your help.

In particular they are hoping to set up the Partnership to focus on Cardiac Surgery Research. In order to get funding to achieve this they need to put forward their plans of who will sit on the steering / working group to the funding committee. They see the importance of having patients be part of the steering / working group to ensure patient needs are at the heart of what they do and are hopeful that you will want to get involved.

I am emailing to ask if this is something one of you or someone in your group would be interested in getting involved in. Given your wider patient links with the Heart Support Group we believe that you’d be able to talk to a range of patients who have had cardiac surgery to find out their viewpoints. If you do get involved and funding is provided, it is anticipated there will be three face to face meetings and six teleconferences over 2 years.

Please note that at the moment this is only putting forward your expression of interest in getting involved with this partnership as funding has not yet been secured and this is not a BHF opportunity – we are promoting it on behalf of another organisation.

I hope this is something you are able to get involved in. I do realise this is all a bit vague so if you do have any questions or would like to discuss anything further please do not hesitate to get in touch.

Best wishes,
Sinduja

Sinduja Manohar
Patient Engagement Officer
British Heart Foundation
Greater London House | 180 Hampstead Road
London | NW1 7AW
DD: +442075540426

A Garden Party – Buckingham Palace

Huge congratulations to Mike for getting an invite to the Queen’s Garden Party.

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From the Royal Family website… https://www.royal.uk/garden-parties

Over the course of each year, The Queen welcomes over 30,000 guests to spend a relaxed summer afternoon in the beautiful gardens of Buckingham Palace …..

At each Garden Party, around 27,000 cups of tea, 20,000 sandwiches and 20,000 slices of cake are consumed!

Garden Parties are an important way for The Queen to speak to a broad range of people from all walks of life, all of whom have made a positive impact in their community.

We wish Mike and Lynne best wishes and hope they enjoy the event and will update blog with photo’s once available.

Sunday 25/05/2017

I’ve posted 2 photos from the Garden Party which was attended by Mike and Lynne.

They tell me the day was fantastic and a great experience.

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Mike & Lynne on the red carpet!

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Her Majesty The Queen

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The Queen looks so tiny.

Congratulations both and very glad the day went well.

Loyal Order of Moose, Tredegar

Many thanks to the people associated with the Loyal Order of Moose, Tredegar for their Grant donated to GwentDefibbers Support Group.

Mike was invited to give a talk about the support group and to raise awareness of ICD’s.

Picured here – Jean Gardner & Mike

jean-mike

The Grant will be used to purchase a projector for the support group.  At present a projector has to be borrowed for each meeting in order for the speakers to convey their messages easier.

Many thanks to Jean Gardner, Ladies section of The Loyal Order of The Moose, Tredegar for inviting Mike and for the Grant.

Meeting Dates – 2017

22nd March 2017

Dear  Members

I write to invite you to the next two Gwent Defibbers meeting which are being held on:-

Saturday 1st April 2017 at the St John Ambulance Hall, Abergavenny NP7 5SG

and on

Saturday 8th April 2017 at Old School Rooms, Park Road, Radyr, Cardiff CF15 8DF.  The meeting will commence at 2pm and will last approximately 2 hours.

The theme for both meetings will be Research and Discussion. We are pleased to welcome back Professor Paul Bennett back to our group to update us on Research he has been carrying out on people with ICD’s.

You will find on the reverse/ attached to this letter a list of the meetings to be held in both Abergavenny and Radyr, Cardiff.  You are welcome to attend either or all of the meetings.

The format /Agenda for the meeting will be as follows:

  1. Welcome from Chairman Mike Morgan
  2. Update on group matters
  3. Update from Secretary/Treasurer Sandra Davies
  4. Guest Speaker
  5. Light Refreshments and chance to Network with fellow members

I look forward to seeing you at the next meeting.

Yours sincerely

Sandra

Sandra Davies

Secretary/Treasurer

Gwent Defibbers

Meeting Dates 2017

Venue: St John Ambulance Hall, Abergavenny NP7 5SG

 

Date of Meeting Topic & Speakers
14th January 2017 ‘Holiday – Do’s and Don’ts

-Hints and tip to consider before going on holiday with an Implant.

 

1st April 2017

 

‘Research & Discussion’

Professor Paul Bennett

Update on the information our members supported Professor Bennett with.

 

17th June 2017 Emergency First Aid

Being delivered by Red Cross

 

9th September 2017  Topic to be confirmed

 

Venue: Old School Rooms, Park Road, Radyr, Cardiff CF15 8DF.

Date of Meeting Topic
8th April 2017 ‘Research & Discussion’

Professor Paul Bennett

Update on the research our members supported Professor Bennett.

 

24th June 2017 The Journey of an ICD

From development, implant, and care

 

16th September 2017 ‘Benefit of Sleep’

Dr Thomas Sleep Apnoea Professional

Dr Nolan cardiologist

Quiz

 

 

 

All meetings are on a Saturday starting at 2pm and finishing around 4pm, you are welcome to attend either or all of the meetings.

 

If you have any queries, please do not hesitate to contact Sandra Davies Secretary on 029 20 889423 or email davies.j20@sky.com