D.V.L.A ICD guidance for those affected
The month of May has been chosen to remind everyone about the importance of having your Blood Pressure checked, monitored and treated as necessary in order to maintain good health.
Here are some fun facts
A simple measure to save lives
Top 10 Tips
What is the aim of May Measurement Month?
What Happens At Screening?
Mike, GwentDefibbers Chairman, recently participated in this scheme, both as a patient and as a recorder, and was delighted with the participation and feedback from members of the public.
He liaised with staff from Tredegar Library and a day was set aside so that the public could make the most of the opportunity.
He completed the form, here,
The BP was recorded three times and then the details were entered on to a card. This personal card was given to the patient, either with advice to go to GP or just to keep for reference.
Members will be out and about participating in this scheme throughout May so keep an eye out for the chance to have YOUR blood pressure checked.
You can read a report here via BBC Wales online entitled Compulsory CPR Lessons rejected for schools in Wales
The idea for compulsory CPR lessons in schools was promoted by the British Heart Foundation (BHF) but the dreadful decision to reject this plan was made by the Welsh Education Minister Kirsty Williams A.M.
The BBC article states that,
In Wales, there are around 2,800 cardiac arrests which happen outside hospitals each year.
Fewer than one in ten people survive across the UK – a rate BHF Cymru said was lower than rates reported in other countries.
Let’s hope that Kirsty Williams will research this subject in more depth and will have a change of heart.
More about Kirsty Williams can be found here https://gov.wales/kirsty-williams-am
Mike (GwentDefibbers Chairman) has invited Ms. Williams to a support group meeting. We hope she accepts the invitation as it would offer her an opportunity to chat with various group members who have found themselves in the unenviable situation of requiring assistance following a cardiac arrest.
Many thanks to Dawn Watkins (Heart Nurse Specialist) and Danielle Horrigan (Highly Specialist Cardiac Physiologist) for attending and supporting the GwentDefibbers meeting on Saturday 20th April 2019 at the St John Ambulance Hall, Abergavenny.
It was a glorious day and visitors attended from Barry, Cardiff Rhondda, Merthyr and Brecon.
I write to invite you to the next two Gwent Defibbers meeting which are being held on Saturday 20th April 2019 at the St John Ambulance Hall, Abergavenny NP7 5SG (2pm – 5pm approx.) and on Saturday 18th May 2019 2019 at Old Church Rooms, Park Road, Radyr, Cardiff CF15 8DF (2pm – 4pm approx.).
You will find on the reverse/ attached to this letter a list of the meeting dates to be held in both Abergavenny and Radyr, Cardiff for 2019. You are welcome to attend either or all the meetings.
The format /Agenda for the meeting will be as follows:
- Welcome from Chairman Mike Morgan
- Update on group matters
- Update from Secretary/Treasurer Sandra Davies
- Guest Speaker
- Light Refreshments and chance to Network with fellow members
I look forward to seeing you at the next meeting.
Meeting Dates 2019
Meetings are held at either: –
-St John Ambulance Hall, Abergavenny NP7 5SG.
-Old Church Rooms, Park Road, Radyr, Cardiff CF15 8DF.
|12th January ‘19||Abergavenny||Professor Chris George
Topic: Genetics of the Heart
|2nd February ‘19||Radyr, Cardiff||Dr. Barrie McDonald
Topic: Blood Pressure
|20th April ‘19||Abergavenny||Danielle – Physiologist
Topic: Physiology Checks – An Insight.
Danielle – (physiologist)
Topic: Understanding Heart Failure
Dawn Watkins – BHF Arrhythmia Specialist Nurse – Cardiology
Topic: Holidaying with your ICD
|18th May ‘19||Radyr, Cardiff||Mandie Welch -Heart Failure Nurse
Topic: Understanding Heart Failure?
Dawn Watkins – BHF Arrhythmia Specialist Nurse – Cardiology
Topic: Going on Holiday with your ICD
|7th Sept ‘19||Abergavenny||Mr John Huish Cardiologist
Topic: ICD Implant – The Process
|21st Sept ‘19||Radyr, Cardiff||Speakers to be confirmed
All meetings are on a Saturday starting at 2pm and finishing around 4pm, you are welcome to attend either or all the meetings.
If you have any queries, please do not hesitate to contact Sandra Davies Secretary on 029 20889423 or email Sandraemail@example.com
You are invited to the following seminar – Everyone welcome
Improving Health through Education and Research, at Llandaff Campus, Cardiff Metropolitan University, Cardiff
You are invited to a tour of the Laboratories prior to the event. If interested the meet-up will be in the Reception area at 4pm.
Some people with cardiac arrhythmias experience them as a consequence of rare diseases.
The definition of a rare disease as defined by the European Union can be found here – https://www.raredisease.org.uk/what-is-a-rare-disease/
It is important to raise awareness of rare diseases in order to offer support to those affected by them and this includes patients, carers and families, but also to ensure research teams have the funds to really make a difference to people’s lives.
Rare Barometer Voices
One such group is called Rare Barometer Voices (Eurordis Rare Diseases Europe) and their website can be found here – https://www.eurordis.org/voices
You can find lots of information on this site.
The information is intended for Health Specialists, patients’ and everyone else that may be affected and includes details about who can register on the site.
Do I Have A Rare Disease?
To find out of your disease is classed as rare then click on the link here – https://rarediseases.org/for-patients-and-families/information-resources/rare-disease-information/
Remember, if you have any queries related to your health then discuss them with your ICD Nurse Specialist, Consultant or GP.
Many thanks from GwentDefibbers to the Bethel Baptist Church, Tredegar.
The congregation donated £75 to the support group funds and it has been really appreciated.
The Church website can be found here https://betheltredegar.org/
Santa aka Mike (Chairman) was sighted recently in the Ice House at Bedwelty Park, Tredegar.
As you can see he was feeling right at home in there and enjoyed sitting near the log fire listening to the rain and wind howling outside thanks to a visit from Storm Deirdre.
All the children thoroughly enjoyed visiting him there.
Sadly, Santa can’t have a snifter when he’s working so that will have to wait until after he’s delivered all the goods.
Festive Greetings to everyone.